Remember playing statue as a kid, where you had to stop and hold the position you were in until someone said go again.  For 200 people worldwide, it's not a game.

They have a rare genetic condition, fibrodysplasia ossificans progressive (FOP), that causes muscles and other connective tissue to turn into bone, eventually causing immobility as FOP bone fuses joints leaving them frozen in position.

There is no known cure for FOP, but there is help available.  If FOP has touched you or your family you may wish to be part of the Canadian FOP Families & Friends Network and partner with the International Fibrodysplasia Ossificans Progressiva Association, http://www.ifopa.org/.  The network along with IFOPA, will promote awareness and informed patient care in Canada.  To learn more about the network, please print this  form or send an email with your contact information to This e-mail address is being protected from spam bots, you need JavaScript enabled to view it .